My life changed approximately 2004 with the diagnosis of Graves Disease. I felt like I had everything going for me. Graves’ disease affects females more often than males by a ratio of 5-10 to 1. Like T1D, the exact cause of Graves disease is unknown, but one of the theories around the onset of Graves is that it surfaces due to stress or an infection. – Jamal Londry-Jackson​. “He gets hot, and he gets very naughty and doesn’t listen. My grandmother battled with an underactive thyroid for years.My doctor then referred me to a well-known endocrinologist who specialize in complex cases of Graves Disease. Click here to read. The choice for if, when and which form of definitive treatment is individualized for each patient. So, me and my poor painful body secretly searched for a new endocrinologist. At the time, I was just starting out in my career as a school counselor, had just bought my first home and was in a new relationship. As Kade’s thyroid hormone … He wants to learn guitar and piano and Mandarin. Nikki’s Graves’ was a smidge milder, but she was exhausted, 20+ symptoms, medicated, and was facing a choice between radioactive treatment or thyroidectomy because methimazole – medication used to treat Graves… It is based on the latest research, science, emerging evidence and patient success stories of Graves Disease and remission. My journey … Thanks so much for this reply. “He loves everything and wants to do everything. I hit many unusual and unfortunate bumps in the road before I came to a place of wellness, peace and acceptance.As the winter progressed, it felt like my health was starting to digress. The latter, hindering my promising opportunity to play in the NFL. Fighting Graves is a step by step guide for reversing Graves Disease. Kade’s heart was beating fast even when he was watching TV or playing quietly with toys. It is named after Robert Graves… Now I will need block replacement therapy (which is complicated in itself) and I might have to get off of PTUwhich I cant live without. “Dr. I continue to eat well, exercise regularly, get plenty of rest and keep my stress levels down, which really helps. Thanks so much for this reply. The boys stay busy with street hockey, basketball, soccer, flag football, karate, tennis and golf. Graves’ disease occurs in almost any part of the world. At this time, my doctors were really pushing for me to do RAI as soon as possible. PTU has a black box warning and its not meant to be taken long-term at higher dosages. The truth is, if those symptoms had happened to a teenage girl, it wouldn’t be a leap to consider hyperthyroidism as a potential diagnosis. I kept telling myself,   “I’ve been playing sports since I was 4 years old. Although it was my worst fear, I was comforted in the fact that I have exhausted all treatment options for this disease. Hyperthyroidism is a disease in which the thyroid gland makes more thyroid hormone than the body needs. "(via e-mail), Living with Myasthenia Gravis and Graves Disease, contributed by Judy Sonkin - Click Here to Read"I don’t know why I have this disease and I never will. … Living with Myasthenia Gravis and Graves Disease This story is about Graves Disease (thyroid)) and Myasthenia Gravis (MG means grave muscle).. My levels where off the charts, specialist had never seen such high levels. I knew thyroid problems ran in my family, but mostly Hypothyroidism, as far as I could recall. The prognosis for Graves Disease remission was not a good one. At Kade’s 5-year well visit at CHOP Primary Care, High Point, his pediatrician, Richard Santos, MD, ran a urine test and, later, some blood tests to try and figure out if there was a medical explanation for the changes in Kade’s behavior. The pressure this disease was putting on my heart and liver was no longer worth it.Over the next couple of months, I prayed about this impending surgery and interviewed various surgeons for the job. Additionally, I lost my relationship as well as I felt I had nothing to give to anyone during my health crisis. I got sent to the ER on February 3rd, 2014, I got admitted into the hospital with … For the last six months or so, Kade’s Graves’ disease has been under control and so have his symptoms. “Graves’ Disease Life Stories” EBook was created by all of you- specifically 32 people, from all different continents- Australia, New Zealand, North and South America, Africa, Europe and Asia: men and … Be gentle with yourself. Like I said, things were great for about a year and a half until we started to decrease my PTU. Graves’ disease, which affects approximately 1 in 10,000 children in the United States, is the most common type of hyperthyroidism. “He’s bouncing off the walls,” Kate says. After some extensive lab work, my general practitioner diagnosed me with Hyperthyroidism caused by Graves Disease (based on my autoimmune antibody blood work). Although Graves' disease may affect anyone, it's more common among women and before t… Educating myself on thyroid disease, acknowledging, understanding and accepting the disease has helped me tremendously during the healing process both physically and mentally. His mother, Kate, says she thought, “He’s 4 and running all over the place. As much as I just wanted to get off the meds, I couldnt as I was warned against the possibility of going into Thyroid Storm. That’s a huge relief for the family. An infection can trigger antibodies … Interestingly, several members of both Kate’s extended family, and her husband’s, Mike’s, family, had been diagnosed with autoimmune thyroid disease. “He tells me, ‘I try so hard to be a good boy at school.’ He really wants to please his teacher, so I understand.”. I didnt turn bright neon green/yellow and none of my electronics sparked from nuclear contact. Philadelphia, PA 19104, ©2021 The Children’s Hospital of Philadelphia. I was diagnosed with Graves’ disease a few months after having a baby. It was an instant success with no surgical complications and a pleasant hospital stay. It could always be worse, I like to say.Stress is a major trigger and managing that is my new life project. Fortunately, I didnt get the bulging you sometimes see with Graves, but I had blurred vision, a gritty feel in my eyes and frequent eye infections.My new endo and his team of course offered me the usual three choices of treatment: medication, Radioactive Iodine (RAI) and surgery. Manage Stress the activity and runny nose; For allergy … E-mail us at info@gdatf.org!NEW! The thought of RAI just didnt sit well with me this early on in the condition. The post-surgery recovery and leadership adversities going into my senior year of college football proved to be a trying and dark time in my life. My symptoms are tremors and high heart rate, eyes are good but I'm not skinny, wouldn't mind the skinny bit. Five Years Later: Reflections and Celebrations of a Former Graves … As Kade’s thyroid hormone production returned to normal, so did his gentle personality and (mostly) good behavior. It was tough for the first year with levels and symptoms all over the place but I'm stable now unless I get really stressed. ). Hi Everyone,I hope you are all staying safe and well during these challenging times. Im still on PTU and my thyroid levels are up and down. Wendy Williams is taking some time off from her popular daytime talk show to focus on her health. Testing TSH Levels. In fact, if I did it again, I might be looking at doses in the amount given to thyroid cancer patients. This is the story of how I cured my Graves disease … Your advice is great. Both are very difficult to live with. Graves' Disease and Pregnancy Planning - 2010, A Short History of Graves' Disease Reporting in North American Newspapers, Radioiodine Treatment for Thyroid Disease, Diagnosis and Treatment of Subclinical Hypothyroidism, Playing on One String - Day to Day Life With Graves'. But his mother thought it was his asthma medication, which has a potential side effect of rapid heartbeat. The following stories were graciously shared via e-mail and social media to let other patients know that they are not alone! Personal Stories Of Graves Disease Once in a bottle and is frequent workout along with exercise and a careful diet is the master coordinator are ya ready it is against truth and Universal law will eventually … Webinar on Long-Term Use of Antithyroid Drugs - Feb. 6th, Virtual Support Group Hosted by Yale Oculoplastic & Reconstructive Surgery, Short-Term Supply Disruption for TEPEZZA (TM), Webinar on Long-Term Use of Antithyroid Drugs - Saturday, Feb. 6th, Concerned ex girlfriend: graves rage & abuse, GDATF and Yale Oculoplastic & Reconstructive Surgery to host Virtual Support Group, My husbands behavior is irrational after TT. That’s just how he is.”. But they all had hypothyroidism, known as Hashimoto’s thyroiditis, a condition where their thyroid doesn’t produce enough thyroid hormone. When I was first diagnosed, my condition was so bad that I was taking between 12-15 pills a day and I was on 60 MG of Methimazole. Not "looking" sick but feeling terrible...it's tough. He or she will want to check on … Graves Disease – My Story of Hyperthyroidism. Females are five to 10 times more likely than males to have Graves’ disease, the autoimmune form of hyperthyroidism. Adversity for most is perceived as a hindrance, however in my life, it has been a constant motivation. I spent a week home alone mostly reading and watching Netflix while I wondered what was occurring in my newly radiated body.Fast forward six months and the RAI hasnt worked. This is usually the first test the doctor orders. They welcomed me back with open arms and ran some blood work. "After I was out of a 5 night stay in the hospital, including a night in an ICU setting, and once I was on my feet again, I was told that I could have died, if I didn't get any treatment when I did. It is the most common cause of hyperthyroidism in the United States. “It’s busy around here, but a lot of fun,” Kate says. The mechanism of disease involves an … The initial step is to start a medication, which works by lowering the amount of thyroid hormone. I limped when I walked and needed a cane as a walking aide. (I mean, other than the COVID-19 crisis. Graves’ disease is an autoimmune disorder characterized by a hyperthyroid state and the accompanying signs and symptoms caused by excess thyroid hormone. After living with Graves for three years, I can see both sides of this very well. Remission is most likely within five years of diagnosis. I just made an updated video as I recently had a relapse. Five Years Later: Reflections and Celebrations of a Former Graves Girl, contributed via email by Christina Aragon. In January of 2002, I was diagnosed with Graves disease, a form of hyperthyroidism. Graves’ disease was first identified by Irish physician Robert Graves about 150 years ago. After my diagnosis with Graves disease I was overwhelmed with the lack of information available on how to treat it and how few success stories there were. I’m   fine”. Upon decreasing my PTU, my Graves flared up with a vengeance. Here's to 5 years of being thyroidless and overcoming Graves Disease!! Then a new doctor ran some bloods just for interest. Hope that all is well with you. “People have tried supplements and even gluten-free diets, but — as of now — no data shows these efforts increase the chances for remission. The right side of my thyroid was like three times the size of the left side. They were amazed I hadn't gone in to Cardiac Arrest. I was... Hello and welcome - This video on the emotional aspects of Graves' disease will hopefully be of interest.... Hi Patsy—- I hope you are well. I must not question that, as it won’t bring me to a better place. Pictured above with his mother Kathryn, aka "Mama Kat". Although a number of disorders may result in hyperthyroidism, Graves' disease is a common cause.Because thyroid hormones affect a number of different body systems, signs and symptoms associated with Graves' disease can be wide ranging and significantly influence your overall well-being. The symptoms are numerous and life-changing, … “He acts like it’s not a big deal,” Kate says. Graves' disease is an autoimmune disease that affects the thyroid gland. That’s when I know his Graves’ disease is under control, when my sweet boy with his heart of gold is back.”, 3401 Civic Center Blvd. Most narcissism is confronted graves disease stories by unfounded derision toward something of value to the lack of height. We all endure adversities, no one’s journey is easy. I had just turned 40 years old and wanted a brand new lease on life so I had the surgery on March 9th, 2015 at St. Josephs Hospital in Phoenix, AZ. 2 years on levels are still extremely high and can not get heart rate under 120 p/m. Best to us all..."K.C.T. Graves’ disease occurs when a child’s immune system develops antibodies that attach to the thyroid cells, causing them to produce too much thyroid hormone. We discovered that my TSH, T3 and anti-body count were so abnormally high, I was at risk for Thyroid Storm again. NEW! Doc says to use drops and ointment. He is constantly playing sports with his 6-year-old brother Alec. And he’s always hot, even in air conditioning, but it’s summertime. He takes his medicine every morning in some applesauce. Graves' Disease - An Interesting Story By Dr Sandra Cabot One of my female patients aged in her late 30s was experiencing recurrent attacks of atrial fibrillation which necessitated her being admitted to … Graves’ disease is the 5th quarter in my game of life, and all I can do is win." Per my pre-consult with Dr. Shatul L. Parikh of Northwest ENT and Allergy, my surgery for thyroid removal will take place on Thursday, September 29, 2016. Thank goodness for Urgent Care facilities. Deciphering Scientific Studies: Join the "Journal Club"! For some, the course of the disease is very predictable; however, for some there are ups and downs even when the child follows the treatment plan. Keep your thoughts positive and your peace close. “I can tell in a hurry,” says Kate, when his thyroid hormone levels have increased. In a person with Graves' disease… I was placed on hormone replacement (Synthroid) right away. There is light and life at the end of the tunnel, and I hope you find my positive story uplifting. Graves' disease is an immune system disorder that results in the overproduction of thyroid hormones (hyperthyroidism). It is chronic, it is hard to "manage", and even more hard to explain to others, especially those closest to you, why you are so damn easily irritated. The medication hasn’t zapped Kade’s energy. However, both Hashimoto’s and Graves’ have an … I watched this video already actually and appreciated the perspective. Unfortunately, two weeks prior to my surgery I got really ill and ended up in the ER when my thyroid was swelling up and choking me, not allowing me to clear my lungs. On January 31, 2014, I got diagnosed with Graves Disease by my pediatrician and got put on methimazole. Once Kade was diagnosed with Graves’ disease, Andrew Bauer, MD, Director of the Thyroid Center, spent time explaining how the disease works and the course of treatment. I would highly recommend my surgeon over and over again. Graves’ Disease Case Study – Sue Brown Background Perhaps I am a-typical because I first started with Graves Disease symptoms in 2001, diagnosed in 2002 when I first consulted my GP. Children’s Hospital of Philadelphia is a charitable 501(c)(3) nonprofit organization. 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